Chapter 16: Summer Vacation Story

How We Spent Our Summer Vacation

or

Take The Long Way Home

                           August , 2002

 It’s hard to believe that a simple summer vacation can turn into an unexpected thrill ride but that just seems to be a part of Rose’s impact on our lives.  But I’m getting ahead of myself; what’s important is that everybody’s OK now.  Nobody got seriously hurt in the car accident and Rose was, for reasons completely unrelated to the accident, in and out of the hospital, with only a brief, less than 24 hour stay in the PICU.  Rose bounced back from this illness faster than we’ve ever seen her recover from any of her medical challenges.  She really seems stronger and sharper now than she ever has.  I think that, along with the wonderful support we had from our special friends in the PICU has gone along way to healing the pain we feel in our own hearts when Rose is faced with these impossible challenges. There is kindness and support that comes from the most unexpected places to help carry us through our darkest days.

This wild adventure started out all quiet and innocent as our long anticipated, once a year, big family summer vacation.  We had already done one weekend camping trip to the Connecticut shore.  That had gone well but we were really looking forward to traveling to distant, exotic lands of New Jersey.  We chose New Jersey as our vacation destination because of its warm ocean beach that we could reach in reasonable amount of car travel time and the possibility of near by interesting sights.  Erin and Katie do alright in the car on long trips, usually zoning out with their music or books but Rose is a different story, after a short while she gets bored and, much like any little sister, she starts torturing her sisters for attention, she really seems to enjoy the reaction she gets from pulling on Katie’s pony tails.

 We tried to carefully make our plans for the least stressful vacation possible, just drive to the Northern New Jersey Atlantic Shore, keep the total drive time to a little more than three hours, go Monday through Friday to miss the big weekend crowds and go see things that could interest all five of us.  We were planning on swimming in some warm ocean surf, not the chilly waves that are typical of New England, and we were hoping to see the near by Statue of Liberty and take in our first sites of New York City as a family.  

Monday – Going On Vacation

It was a hot August morning when we headed out in the late morning after we finished packing the van full of camping gear.  We were all a little more tired than usual.  We had just been through several days of another one of this summer’s oppressively hot, oppressively humid heat waves.  Rose in particular seemed to be dragging a bit more than usual.  For a week or so Rose seemed to be showing little signs of increasing fatigue, and, of course, it’s easier to see in hindsight now.  She had started taking afternoon naps again, something she had stopped doing last spring when she made the big jump from her crib to a “big girl” bed.  I tried to rationalize to Cheryl that maybe Rose was finally getting used to her new bed and so now she was comfortable enough in her new bed to nap again but Cheryl wasn’t buying it.  She felt something was different, not quite right, but couldn’t quite put her finger on it. 

Rose’s summer schoolteacher, Mrs. H., had commented to Cheryl that Rose had unexpectantly shown an act of defiance.  During the last days of summer school just before our vacation, Mrs. H had offered to help Rose go the toilet.  It had become a fairly regular part of the school routine as she worked with us on Rose’s toilet training.  Most times Rose would accept the offer, sometimes she would politely decline, but this time Rose had an uncharacteristically harsh reaction, shouting our a firm, “No!” and snapping off a hard defiant ‘No’ hand sign in Mrs. H’s face.

Mrs. H had reported this when Cheryl picked Rose up on her last day of summer school, more in the sense that she was impressed with the firmness in Rose’s stance, and not that she was concerned about Rose’s behavior.  Mrs. H and Rose had enjoyed each other’s company for four wonderful weeks of summer school.   

Cheryl and I shared these observations as we drove out of Connecticut.  We thought maybe Rose was off her game a little bit but not a lot.  Maybe she had a mild virus of some kind; maybe she was run down from this last of the many summer heat waves.  We hoped for a break in the weather, maybe that would help; maybe she’d get her energy back.  Rose seemed OK, she really didn’t seem all that different, but somehow still not quite herself.   We hoped it would pass but we both had the vague feeling that something was eluding us.

 The ride down to New Jersey was uneventfully pleasant.  Last year our big summer camping trip to Cape Cod had pushed the limit of our family’s car-riding endurance, the three plus hour ride each way had really strained our nerves.  It was pretty tight fit in our van with the third, way-back bench pulled out so we could fit in a week’s worth of camping gear.  The three girls were a bit crowded in the remaining bench seat with Rose’s car seat squeezed in the middle with Erin and Katie on either side.  Cheryl and I were sitting in relative parental comfort in the front seats.  Erin, twelve at the time, was smart enough to position herself just out of a bored Rose’s grabbing reach.  Eight year old Katie, however couldn’t quiet figure out how to get comfortable and still avoid Rose’s reach.  I think Katie ended up getting her ponytails pulled every 30 seconds.  OK, I’m exaggerating but eventually Cheryl would end up sitting in the back switching seats with Erin and settling 2 ½ year old Rose down.  We made it, we survived, but it definitely left a memory that was part of decision-making process when we were making plans for this vacation. 

But the ride down this summer went OK, we didn’t get lost, we didn’t hit any traffic and we didn’t have to break up any arguments between cranky, cramped kids, a major accomplishment for our family.  Of course, the reason for this is obvious.  Our 3 ½ year old, all-through-with-napping Rose, did sleep, quite a bit.  Uncharacteristically, Rose did take one long nap before our lunch break and another short one afterwards.  We all did notice this as something different but, again, not that different.  We rarely go on long trips as a family, last summer in the car to Cape Cod and last November by plane to Florida were very unusual experiences for us.  Usually, our longest car rides are a 30-minute rides once a month or so, just one or two towns over to visit relatives.  Maybe Rose had changed since lat year, maybe now she was going to sleep on long car rides.

 We started unpacking all our gear out of the van and setting up camp in some of the hottest, most humid weather I can ever remember. We were staying at The Cheesequake State Forest, a small state campground in Northern New Jersey.  It was a short 20 minutes drive to both New York City and the Northern New Jersey Atlantic shoreline.  It definitely helped that Erin and Katie are getting older and much more experienced.  They’re both a big help with setting up our two tents, one for the two older girls, one for Cheryl, Rose and me, and the canopy for the picnic table as well as setting out all the bedding, and getting their tent arranged.  Rose has even started pitching in a little bit on the last camping trip in June or playfully running away when she felt like a good game of chase.  But this day Rose was a little more subdued than normal.  She seemed to want to just sit in one place, actually stay wherever we put her; she hadn’t done that in years.  Still, we were thinking, she’s probably tired from the long car ride or from the hot humid weather. 

We were all pretty tired, too, after setting up camp and decided to keep the rest of the day low key and as simple as possible.  All five of us headed down to the pond at the other far end of the campground.  The water was warm but still refreshing and the beach sand was clean and smooth.  As we’ve found in the past, a warm, clean shallow beach with no surf is the ideal play area for Rose, and this day was no different.  She seemed to perk up and take an interest in playing on the beach at water’s edge.

 After our refreshing swim we headed back to the campsite for a late dinner.  Later, we all spent the evening sitting around the campfire, a relaxing enjoyable experience that comes with camping.  Rose fell asleep in my lap at about 8:30.  This is about her normal bedtime at home but early for the first night of camping.  Normally, all the kids, including Rose, are excited to be camping and have a hard time getting to sleep that first night, staying up hours past their normal bedtime.  That didn’t seem to have the usual effect on Rose this time.  After I put Rose to bed in her hand-me-down Lion King sleeping bag (no port-a-crib this year) I joined Cheryl and the older girls back at the campfire ring.  We talked about our plans for the next day and for the rest of the week, what to do first, what to hold off for later.  Cheryl and I tried to take into account how Rose was feeling; we talked about her low energy level and how much she had been sleeping.  She had seemed to bounce back a little bit when we were swimming at the pond but she was still not herself.  We decided to do the vacation’s physically least taxing activity first; the next day we would go to the Six Flags Safari Adventure.  We’d be able to stay out of the sun in our air-conditioned van the whole day while we toured the animal park. 

That night, as we all slept, we woke to the sound of heavy rain hitting our tents, winds blowing and whipping and an occasional loud thunderclap booming in the distance. The heat and humidity was finally breaking, a cold front was rolling through. 
 

Tuesday – Crazy Baboons

We woke the next day to some the best summer weather we’ve ever had, a clear blue sky, dry air and comfortable temperatures.  It felt like a turn for the better and we would be fortunate to have this weather for the rest of our vacation. The campground was mid-week quiet and we had all slept late.  We had been concerned the day before when we saw signs in the bath-house stating that it would be closed for cleaning from 7:00 to 8:00 am (alright, I wasn’t concerned for myself) but we were all a little incredulous.  “How can they be closed then?  That’s when everybody’s waking up!”  Well, not us, we all slept pass 8:00.  Rose woke us up.  She enjoyed crawling out of her sleeping bag and climbing on top of mom and dad.   

Eventually we all got up and got going, even Erin managed to drag her teenage self out of her sleeping bag, and we enjoyed a lazy camping breakfast.  Cheryl made lunches for everybody and packed a cooler and by late morning we were heading down NJ State Rt. 9 for about a 30-minute drive to the Safari Park. 

We spent about an hour and a half slowly driving through, taking in all the animal sites.  We all enjoyed ourselves very much.  There’s something very impressive about seeing an elephant standing fifteen feet away from your car balancing on three legs so he can scratch his hind leg, or giraffes leaning down to look in your car window, or nervously watching European brown bears stroll past your car, or seeing a pack of antelopes turn their backsides towards you and defecate in unison.  This last one, in particular, caused a near hysteric reaction from Erin and Katie.   

But the grand finale was driving through the baboon compound.  The park does make an effort to warn you before you pull into the baboon area, and there was a bypass road available but nobody was taking it.  We followed the line of cars in through the large chain link fence gates.  Initially, we could see a crowd of baboons climbing all over a sub compact full of twenty-something year olds. They were enticing the animals with potato chops pressed against the inside of the windows.  Foolishly, we almost envied them and all the attention the baboons were lavishing on their car.   

Within a few minutes, the baboons worked their way along and atop the slow moving line of cars and we had our chance.  Erin and Katie again were laughing hysterically as first one baboon, then two and then, finally three baboons were climbing all our van.  One sat on the hood of our car, directly in front of me, munching on something.  I didn’t know what it was up to until it moved off to snack on the other wiper spray nozzle.  As soon as I realized what was happening, I hit the wiper spray button to spray the baboon away, but it was too late, the damage was done.  It didn’t help that Erin attempted to entice him back by spreading out her own potato chips buffet on our dashboard. She, of course, thought all this was incredibly funny. 

Another baboon climbed along the side window.  It was either Erin or Katie’s manic hysterics or it was just the sight of a baboon on the window where Rose had never seen one before, but either way, she was not happy about how things were going.  Rose had a panicked look on her face as she hopped up and down in her car seat, signing ‘off’ over and over again.  We tried to tell her it was OK but she wasn’t convinced. 

At one point we lost track of the third baboon, it was the smaller cute baby baboon according to Katie.  We had a moment when all the baboons were quiet and out of site until Katie spotted a small tail hanging down over our rear window.  We all turned to look just in time to see a small steady yellow stream running down the window.  This is, again, really funny stuff if you are nine or thirteen or any age over three and a half years old. 

Soon we made our way to the end of the baboon compound.  A park attendant holding a large bullwhip managed to scare the baboons off our car and send them scurrying back to the entrance looking for fresh cars to feed on. 

 We were back at our campsite by mid-afternoon.  Cheryl thought Rose still looked a little tired despite the lazy afternoon car ride and thought she might want a nap.  I took Rose for a twenty-minute stroller ride around the paved loop that ran through the campground.  She was asleep before I got back to our site.  Cheryl took Rose and laid her into her Lion King sleeping bag.  We talked for a few minutes about our plans for the evening.  Cheryl thought Rose might nap for a while so she agreed to sit at the campsite to keep Rose company while I took Erin and Katie to the pond for a swim.  After that, we thought we’d find somewhere to eat. 

So Erin, Katie and I headed off to the camp pond.  We had fun playing an underwater chase game that combined hide-and-seek and tag although I always seemed to be ‘it’.  We played for about an hour but it felt strange.  Normally, it seems like the five of us are always doing everything together, especially on vacation.  It wasn’t that unusual for Erin and Katie and I to swim in deep water without Rose but it was odd to not check back on the beach and see her playing in the sand or in the shallow water with her mom.  Now that Rose was napping again, we were splitting up and going in two different directions, at a time when we normally make a special effort to be together. 

We got back to our campsite at the agreed upon rendezvous time.  Rose had just woken up and she seemed refreshed, and in good mood.  We decided to do a little more sightseeing and get our first look at the New Jersey Atlantic Shore while we searched out a place for dinner.  We drove about 30 minutes east on Route 36.  The road had a familiar strip mall, stop and go feel to it but just as we got close to the shore we crested a hill and headed across a bridge into the town of Highlands.  It opened up a sweeping view of the five-mile long Sandy Hook Beach peninsula to the north with the New York City sky line stretched across the horizon and directly in front of us, to the east, were more long runs of beaches and the Atlantic ocean.  It was an impressive, quick glimpse of what we were hoping to explore over the next two days.  We were all excited as the view dropped out of site and we pulled onto the shoreline road. 

 We quickly spotted Gaitor’s, a family friendly looking restaurant, and pulled into take a chance on dinner.  The food was pretty typical family fare and everybody was able to find something to eat, including our finicky kids; Erin’s not eating red meat anymore, Katie, despite her threats to be adventurous sometime in the not too distant future, only eats variations of chicken McNuggets, and Rose has a wide range of two possible food items that are going to be a sure thing; either hotdogs or pasta and meat balls.  Drinks are the same, Erin and Katie we try to steer away from and kind of caffinated drink, believe me, they don’t need any extra energy.  This usually limits them to a Sprite or 7-up, or, if they are feeling especially daring, an occasional Shirley Temple.  Rose prefers milk and we prefer that it came in a covered cup with a straw.  She still drinks mostly through a straw and the covered cup buys us a generous amount of recovery time should she knock her drink over.  Although, I always find it amazing how much milk is still left in a cup that’s been knocked over if you stand it back up quickly enough.  It helps to be quick, that way there’s less spilled milk to cry over, or cleanup.  I guess I’ve done this a few too many times.  Anyway, dinner was relaxing; the restaurant was quiet, the waitress was attentive so we were able to have a comfortable dinner will within the combined range of all our attention spans. 

 As we were finishing up, the waitress offered us the use of the restaurant’s beach just across the road.  We talked about being interested in getting a view of the New York City skyline and she encouraged us to take a quick walk on the beach.  The sun was starting to set as we left Gaitor’s and made our way across the busy beach road. On the shoreline side of the road ran an impressive sea wall, made from large boulders piled over twenty feet high.  We pushed through the gate with the ‘Private Property – No Trespassing’ sign and climbed the wooden steps to the top of the wall.  The five of us squeezed onto the small wooden deck, our impromptu observation deck.  The wind was picking up, whipping down the beach out of the north, Cheryl and the girl’s long hair was blowing about.  It was exhilarating for all us.  Katie and Rose laughed at the thrill of it.  Our short climb up the stairs had given us a beautiful view of the shoreline with the narrow beach running south towards the horizon; the Atlantic waves were pounding on the beach almost at the foot of the beach side of our wooden stairway.  We turned to face into the steady wind looked across the grasslands of Sandy Hook to a wonderfully clear view of New York City just a dozen miles to the north.  The cool break in the weather had brought in clean crisp air and excellent visibility.  The skyline stood out, and with that, we could clearly see the tallest building, the Empire State Building standing sharply above all the others.  It was a bit sobering to get our first, in-person glimpses of this great city’s skyline and to know how much was missing.  Still, to stand on the shore of an ocean, with the sky lit by the setting sun, the wind blowing your hair back and the sound of the surf crashing in your ears is to have your spirit lifted.  The feeling of wellness of having your senses immersed in nature is an undeniable healing force and we could all feel it. 

There was an American flag on the back of the small deck and the wind had it standing straight out, it seemed like the perfect back drop for pictures of loved ones.  The deck was small and only three of us could squeeze into the camera frame at a time, Cheryl was holding Rose, Erin and Katie each jumped in for a picture.  Later, I looked back on these pictures, from all of our vacation photo’s, and realized that these are the last one’s that Rose showed a comfortable, happy smile.   

 We made it back to our campsite after dark.  With Erin and Katie’s help we set about the night time routine; first a trip to the bath house and then attempts to get the campfire lit.  A campfire is an essential part of the evening entertainment out under the stars, and to many gifted campers, the lighting and caring for a campfire comes easily, but sadly we are not one of those families.  Cheryl and I, as the adults in the family have struggled with this responsibility over the many years of our camping trips.  And this has always been a minor point of contention between.  I’ve always been in the lighter-fluid-camp, maybe it’s a little heavy-handed but it’s dependable.  Cheryl has moved into the more patient, natural approach she’d learned through her Girl Scout leader’s training during her years of working with Erin’s troop.  On this camping trip, the lighter fluid had been banished, so Cheryl, with some help from Erin and Katie, struggled to get a fire going.  I sat and watched with Rose sitting on my lap trying to remember if there were any stores open down the road that might have some kind of flammable liquid for sale.  Again, Rose dosed off early, by about 8:30.  I let her sleep for ten or fifteen minutes, enjoying the forgotten feeling of having a small child sleeping on my chest.  Eventually, convinced Rose was asleep for the night, I brought her into our tent and laid her into her sleeping bag.  I rejoined Cheryl, Erin and Katie at the fire ring. 

 We sat up for a few more hours, tending the struggling fire and talking about plans for the next day.  We earlier, had picked up some maps of Liberty Park, New Jersey, at the camp store. Now, we looked them over. Ferries ran frequently from Liberty Park to Ellis Island and the Statue of Liberty.    It looked to be just a shore ride from our campground, back onto the Garden State Parkway,  north to the New Jersey Turnpike, past Newark, off the connector and into Liberty Park.  It looked manageable.  Over the last few days, we had started to become familiar with this part of Northern New Jersey.  This trip looked like it was just a short hop off from the roads we’d been driving on the last few days.  It may seem like an insignificant thing but just getting ourselves, all five of us, to new places is no small task.  It seems like, these days, as parents, we are in a constant state of distraction dealing with Erin’s thirteen year old issues and attitude swings, watching nine year old Katie, following Erin’s lead, determined to grow up even faster and three year old Rose with all her nuances and issues.  I guess, when you add it all up, it’s pretty much like having three kids and we’re pretty much dealing with as many distractions as any other parents with three kids.  But still, the haze of distractions is there, to attempt to go someplace new is a brave undertaking, to think we can actually make it there with ease requires serious planning and bold confidence and to actually arrive, all in one piece, with minimal hassle, is justified cause for celebration. 

Wednesday – The Big Girl

We all woke the next day to another lazy tent camping morning.  Rose was up first again and happily crawled out of her sleeping bag so she could climb on top of Mom and Day.  She was definitely enjoying this new routine.   Rose climbed into the middle of our queen sized sleeping bag and we all cuddled for a while, talking about what we had done yesterday and what we were planning to do today.  Eventually, we climbed out of our tent and got started on a simple breakfast.  Katie soon followed.  Erin, with a teenager’s ability to sleep long into the morning, didn’t join us for quite a while. 

 That morning Rose signed ‘toilet’ so I took Rose for a walk over to the bathhouse.  It wasn’t far, just past one other campsite, and then past the small camp playground.  This was a walk that Rose should have had no problem with, especially combined with her insatiable curiosity about exploring new places.  But she seemed to take forever to cover the short distance. 

Anyway, we made it, she sat on the toilet for a few minutes and then signed, ‘all-done’, it was a false alarm.

In my best supportive parent’s voice, I ask Rose, “OK, are you sure you’re all-done, there’s no hurry”. 

Again Rose signed ‘all-done’ and said “Dah”. 

I reassured her as I helped her get down, “OK, good try.  That was a good try”.

On the way back, I tried to entice Rose in playing on the playscape.  It was about the right degree of difficulty for a three year old and Rose usually loves exploring new playscapes.  She’s all over the two playscapes at our neighbor hood park, both the little kids Tot-Lot and the big kids playscapes, even repeatedly attempting the big kids high steep slide even though she’s crashed hard twice on it.  She still wants to go down it but lately I’ve been talking her out of it.  My nerves can only take so much.  She may be a little thrill seeker but she needs to get bigger and stronger before I let her try that one again. 

But the camp playscape was low degree of difficulty, well within Rose’s climbing and sliding abilities.  I would have expected her to be all over it.  I tried to talk her into climbing up a few stairs on the platform but she showed no interest.  After a few attempts to persuade Rose, I tried to help her, I lifted her over the stairs and put her on the platform, but she just stood there, no interest in moving around at all.  I tried to talk Rose into.  After a minute I picked her back up and carried her to our campsite. 

I relayed the story to Cheryl and she commented on how she had noticed the same thing.  Rose seemed to have lost interest in moving around, instead of wandering around exploring or chasing after her big sisters, she seemed to more and more just stay where she was.  We both knew this was out of character for Rose, but didn’t quite know what to make of it.  Her appetite was off a little, but not a lot, she’s certainly had many swings in her appetite from one extreme to another as she’s gone through various minor illnesses.  She was sleeping OK, actually maybe too well, the extra napping and early bedtimes were out of character.  But we couldn’t tell if this added up to anything to be concerned about.  She didn’t show any signs of having a fever.  Rose’s mood and attitude was still fairly good, despite being a little slowed down by something, she seemed to be enjoying all the new sights and all the concentrated family time.  We were stumped.  We didn’t know what to make of it.  Rose wasn’t herself and yet she didn’t seem to be that sick.  In fact, we really couldn’t tell if she was sick at all. 

 Finally, we got ourselves organized and headed out on the road a little before noon time.  We drove about twenty minutes up the New Jersey Turnpike and made our way to Liberty State Park, only making one small wrong turn, and generally accomplished the trip with minimal aggravation, another little victory for the family with three kids.  We actually had a wonderful day. 

First we took a short walk through the south end of Liberty State Park and took in our first view of all the sites, across the wide New York Harbor we could see the Verazano-Narrows Bridge, the Statue of Liberty, Ellis Island, the south end of the Manhattan skyline and the Brooklyn Bridge. 

We drove to the north end of the park and bought our tickets for our ferry rides to Ellis Island and the Statue of Liberty.  Rose was in her umbrella stroller.  Hopefully, between stroller rides and ferry rides, Rose would have a low energy day and maybe be able to recover from whatever was bothering her.  We boarded the first ferry to Ellis Island.  We sat downstairs, close to the onboard refreshment stand so could grab a quick lunch of hotdogs and soda and water, except Erin, who had a non-red meat lunch item, otherwise known as a muffin. 

We got off on Ellis Island and began to look for evidence of our own family’s passage to this country.  Like many Americans, Cheryl and I are just two generations removed from a life in another country.  Both of us grew up listening to stories of our grandparent’s journeys to a new country and the start of a new life here.  We took some time exploring the exhibits on immigration set up in the main hall.  Erin logged into the Ellis Island database through one of the available computer terminals and found a record of my father’s father immigration from Ireland from over a hundred years ago.   

We walked around, exploring the grounds. On the north end of the island we found a park area with a lower encircling copper wall.  On the wall, we found the engraved names of Cheryl’s mother’s parents, immigrants from Poland from over 90 years ago.  It was a reminder that we were standing, with our children, where our grandparents had passed through when they first set foot into this country almost a century ago.

We found another nice picnic area with a spectacular view of the Statue of Liberty.  We composed a picture with Erin, Katie and Cheryl with the Statue and an open place for me to hold Rose as I set the camera for a timed shutter release.  I pushed the shutter, scooped up Rose and stepped into the picture.  The shutter clicked.  Everybody hit their smile, except for Rose.  We didn’t know it at this time, but she was out of smiles.   

 We caught the next ferry ride to the Statue of Liberty.  This time we all sat up on the open top deck with our backs towards the stern. We were treated to an impressive view of the New York Harbor all around us.  As we climbed off the ferry and onto the island, we walked down a pathway between two granite block buildings.  Ahead of us, framed by an archway we could see an American flag flying atop a tall flag pole in the center of a large brick plaza, it’s colors showing bright and strong on this beautiful August day.  Our stop on Ellis Island had been about tracing our own family’s first steps into America but here, in the shadow of the Statue of Liberty, walking on the brick pathways crowded with people from all over the world, we could feel that we were part of an American experience that includes the diverse influence from so many of the world’s cultures.  Listening to the voices and hearing our language spoken with so many different accents, I was reminded how our grandparents with their Irish brogue and Polish accents were drawn to this country by American possibilities and accepted into the American culture to start a new life and raise their new families.  Looking at our own children, and ourselves, with Cheryl’s Polish-ness and my Irish-ness mixed together we are very much a part of that American culture today.  Our ability and our willingness to openly accept people form diverse cultures will help welcome them and their future children and grandchildren.  Our open acceptance of people that we perceive to be different from us is our most positive contribution to our unique American culture. 

Looking at Erin and Katie growing up in out small Connecticut town, with friends and classmates from a wide array of world cultures, I see today’s American girls.  Seeing their natural open acceptance of a world much different than the one Cheryl and I grew up in, I see the promise for a better future. Looking at Rose,  so much like her older sisters plus one more chromosome, living in a world that amazes her and is amazed by her, that challenges her and accepts her, I see that promise being fulfilled and I see tomorrow’s American girl. 

 As we walked around the island’s perimeter pathways, we were very much taken in by the immenseness of the Statue of Liberty.  We struggled to frame pictures of our family with the close towering statue in the background.  Much to the girl’s amusement, I laid down on the walkway to get a picture looking up at them standing with their mom and Liberty’s torch held high above them.  Rose, was conflicted by this, she had to fight her strong urge to mimic.  If the photographer stands, sits, kneels or crouches, Rose instantly copies and assumes the same pose.  Only with enthusiastic and persistent persuasion from Cheryl, Erin and Katie did Rose agree to stand up even though I was laying flat on the brick walkway at her feet.  Cheryl took a more dignified approaching, kneeling to get a picture of myself with the three girls in front of the statue.  

              

As we were getting ready to leave the Statue end of the island Cheryl turned to Rose, “So, Rose, what do you think?  The Statue of Liberty is pretty big, yes?”

Rose looked at her mom in agreement, her eyes wide in her excited “O” face.  Her hands swung out flat, thumbs tucked into her palms – Big.  Her left hand closed and came up to her face, the tip of her thumb swept the side of her face – girl.

“That’s right, Rose,” Cheryl answered, “She is a big girl.”

 Later, while Cheryl took Erin and Katie to the gift shop, Rose and I sat on the edge of the large circular flag plaza.  After a few minutes, Rose struck up a quick play session with a little boy that happened by.  His mom told that they were from Germany, they were in the United States for a few months on a work visa.  Rose and the little boy played for a while, the fact that he didn’t speak English obviously didn’t get in the way, they were using the universal language of little kids at play.  For me, it was great to see Rose on her feet running around, ok not running, but walking fast and doing her best to imitate running.  It was an encouraging sign, it was the most energetic I had seen her play in over a week.

 One more ferry ride across the New York Harbor and then a short drive back down the Garden State Parkway to Manhattan and we were back at our campsite bye late afternoon.  Again, Rose took to our tent for a nap.  Staying with this week’s routine,  Cheryl stayed at our campsite to watch over Rose and I took Erin and Katie down to the pond for a swim and a quick hike.  The three of us were getting used to spending afternoons together.  After about two hours, we met back at the tents, Rose was just waking up, refreshed from her nap.   

 We all talked about plans for dinner and decided to head back onto Rte. 36 east and look for some place to eat in one the northern shore towns.  As I drove, Cheryl studied the maps and picked Keannesburg as a potential dinner site.  After a few minutes we pulled off Rte. 36 and drove down along the Keannesburg shore road past the largest, most sprawling, ramshackle, summer time, beach town amusement park we’d ever seen.  Never ones to pass up an opportunity to Erin and Katie were immediately sold on the place.  We decided to park and search out a family type place to eat, no easy task on a quiet Wednesday night in a small beach town in mid August.  Eventually, after some walking for us and strolling for Rose, we ended up sitting in a sidewalk café across the street from the amusement park.  Erin and Katie could barely contain themselves as they listened to the clatter of the roller coaster and the screams of thrills that went with it.  They were already having a great vacation and this was an unexpected bonus.  We finished dinner and headed across the street for an evening of searching out fun and excitement on bumper cars and roller coasters.  But this was mostly an evening of fun for her older sisters.  Rose didn’t seem happy about all the shrieks and clattering from the different rides.  She was almost inconsolable as she watched Erin and Mom ride the big roller coaster, no amount of reassurance could quiet her fears.  Only when Mom and Erin were safe back in Rose’s arms did she finally settle down. 

Rose herself almost made it on to one ride, but not quite.  This was more of a large scale beach-town amusement park probably aimed at teenagers on a summer night.  Rose had done well at our town’s summer carnival last summer riding a few kiddie rides but those were about the right size, or right thrill level for her.  This time, Rose came close to climbing on to a full size merry-go-round but backed off at the last second.

It was a relatively late night for us, after ten o’clock, when we finally pulled back into our dark campsite.  Surprisingly, Rose was still awake and pretty alert.  After the kids were all in their sleeping bags, Cheryl and I talked about the day’s adventures.  In particular, we both thought she seemed a little more energetic, a little more herself.  We hoped these were the first signs of Rose getting over whatever had been lingering on with her all we.  We thought we had paced our vacation week just right so far, and that the next day we’d be ready for a day under the sun and on the beach at Sandy Hook. 

Thursday – A Warm Ocean Swim

We all woke late again the next morning and took a few hours to go through our lazy morning camping routine before we started preparations for a day at the beach.  Late morning Cheryl packed the cooler with lunches and snacks.  Camp chairs and beach towels and sand toys were loaded into the van.  We all changed into our bathing suits and climbed in for the half hour car ride east the now familiar route 36.  It was another quiet, amiable ride.  On a vacation filled with daily car rides back and forth to our place of amusement for the day and most evenings searching our restaurants in new places we had racked up an unusually high number of hours with all five of us squeezed into the van.  But what was even more unusual was how well we had all been getting along, none of the normal sibling squabbling, none of the normal parental fraid nerves.  Maybe we were all feeling some of the effects of a fun, relaxing adventurous (for us) vacation. 

We pulled into the beach parking lot and unloaded all our gear.  With Erin and Katie’s help we made the short walk down the path through the dunes, struggling with armloads of blankets and chairs and one full cooler.  We were greeted with the site of a near ideal beach, clean sand with not too many rocks, a 3 to 4 foot rolling breakers perfect for body surfing, a not too crowded Thursday in August beach crowd and a bath house just off to our left within easy walking distance.  We set up our chairs and spread out our beach towels.  After a liberal application of sunscreen goop we all headed for the water’s edge and we were greeted with the warm waters of the Gulf Stream for the first time in our family’s life.  This was not the bone-chilling mid-50’s ocean water we had swam in off Cape Cod National Sea Shore last summer or off the beaches in southern Maine.  This was comfortable, mid-70, swim-all-day ocean water.  Erin and Katie were especially thrilled with the warm waters, and the slow breaking 3 to 4 foot waves.  They started on along afternoon of working on their body surfing technique and a constant search for the perfect waves.  Cheryl and I took turns alternating between playing with Rose on the water’s edge and swimming with Erin and Kate.  Rose enjoyed the splash of the waves sliding out to the edge of the sand.   

The afternoon was getting on.  I had just enjoyed one selfishly long body surfing session with Erin and Kate.  As I stood up after a surfing run and realized that in our quest for that elusive better wave we had worked our way about a hundred yards down the beach.  Katie was standing along side me, Erin was about 10 yards closer to the beach, having just out distanced us again.

“Erin, Katie,” I called, “We’re pretty far down the beach.  Let’s try to get back closer to our towels.” 

They both looked back up the beach, trying to locate our spot on the beach.  They could see we were further apart, more spread our then we’d been all day.  “OK, Dad,” they answered as we headed back. 

As we waded and swam our way back up the beach through the ocean surf, I could see that Cheryl and Rose were no longer playing on the edge of the surf.  As we got closer I could see Cheryl sitting in one of our camping chairs near our beach towels.  “Erin, Kate,” I said, “You can see our towels? You can see Mom?”

 “Yeah,” they answered

 “OK, make sure you swim right here.  Don’t let yourself go down the beach.  Erin, stay with Kate. OK? 

“Sure Dad,” she answered with her confident girl in charge voice. 

I took the short walk up the beach slope to where Cheryl sat with Rose cuddled on her lap, a beach towel thrown over her for shade.  As I approached Cheryl gave me our old silent hand signal, a hand modeling sleepy eyes closing.  Cheryl lifted the towel to show Rose curled on her chest, fast asleep.  

 

“She’s been sleeping for a little while,” Cheryl whispered, “She’s wiped out.”  She put the towel back down to shield Rose from the sun.  “I think she’s dehydrated.  She threw up before.” 

“She threw up?” 

“Yeah, I took her to the bathroom before, she said she wanted to drink some water as the water fountain but I don’t think she drank that much.  She hasn’t really been drinking that much all day.  I couldn’t get her to drink much of her juice at lunch time either.’ 

“Well, what do you think we should do?  Pack up? Head back?”  The beach was starting to change.  Stretching out our stay to steal a few more surfing runs was starting to feel a bit frivolous, a bit selfish.  The hot August sun reflecting off the beach sand was starting to feel a little less friendly a little more than Rose could endure. 

“Yeah, I think we should,” Cheryl answered. 

 Rose perked up a little on the ride back to our campsite but she still crashed for one more late afternoon nap with Mom in the tent.  Erin, Kate and I visited the camp pond for our now routine swim and a quick hike.  Back at camp, we met up with Cheryl and a waking up Rose. 

After a brief discussion, we decided on a quick dinner at the Papa Gino’s just down the road from our campground.  We were hoping to get back early for a quiet, low-key evening around the campfire.  Dinner felt familiar with the five of us squeezed into the booth, Rose sat on the bench seat between Mom and Erin, Katie and I sat across from them.  3-year-old inquisitiveness had started to out-quick our ability to keep breakable and spill able things out of her reach.  Rose ended up at the end of the table sitting in the standard restaurant issue wooden high chair, just before the food arrived, just like almost always happens. 

The waitress greeted us quickly and we each ordered our dinners in turn, we’ve learned that a successful dinner out requires us to have food in front of us as soon possible, the less downtime, the less time available for some kind of imaginative behavior from one of the girls and the less Cheryl and I have to dig into our, at times somewhat limited supply of parental patience.  Cheryl and Erin ordered a cheese pizza, Katie ordered the same thing she always does, “Chicken McNuggets.”  Even though we hardly ever eat at McDonald’s this title has stuck with her and she uses it regardless of the restaurant we’re actually eating at.  Cheryl had checked the kid’s menu and spotted two of Rose’s favorite meals, “Rose, what do you want to eat?  Hot dog or pasta and meat balls?” 

Rose thought about it for a second and then answered with her hands, left hand pinching the skin between her right hand’s thumb and index finger. 

“Meat”, we echoed nearly in unison. 

Next Rose’s two hands formed a ball shape in front of her.  “Ball.”  Then Rose’s two thumbs, not pinkies, pointed together and then swept apart.  “Pasta”

“Pasta and meat balls?”  Cheryl repeated. 

“Yeah!”  Rose answered in her sweet voice.

“OK, Rose, what do you want to drink?  Tell the waitress.”

Rose’s left hand reached out in front of her, squeezing open and closed, she turned to look up and watch the waitress’s reaction.

“Milk” we echoed. 

The waitress nodded and scribbled another entry on her pad. 

In an aside, Cheryl asked, “Do you have a covered cup with a straw for the milk?” 

“Oh yeah,” the waitress answered, “The drinks come like that with the kids meals.” 

This is a pretty comfortable routine for the five of us have developed during our almost weekly dinners out.  Usually its Friday night at Giovanni’s the local Italian family-style restaurant.  Often, we’ll have the same waiter or waitress for several visits in a now and like waiters and waitresses with regular customers everywhere they’ll quickly pick up on our routine and habits, from Katie always ordering “Chicken McNuggets” to Rose’s unique way of communicating.  We’ve never had a negative experience.  I don’t believe this is because we’ve had a lucky run, I believe this is because people are basically open and accepting.  Often, after a few weeks of the same waitperson, they’ll start to focus more on Rose’s responses, asking her themselves, relying les on our prompts and echoed answers.  And then they’d leave with our orders and a few casual words for Rose, “OK, Rose.  I’ll go put your dinner orders in now.”  Rose would touch her left hand’s fingertips to her chin and then wave her hand down and out, ‘Thanks.’ 

This dinner went well, too.  The food arrived warm and quick and we were all hungry from our day at the beach.  Rose, too, seemed to have bounced back from whatever had been bothering her.  Her on-again off-again appetite was definitely on.  She ate most of her meatballs and pasta and took several long drinks of her cold milk.  We were a little relieved to see Rose getting her appetite back after her rough afternoon at the beach.  We are always looking at Rose, trying to judge her moods, whether she’s starting to come down with something or whether she’s starting to show the first signs of recovering.  In many ways, I’m sure it’s similar to the monitoring we did and still do with Erin and Katie, it’s the normal parental process of trying to make constant minor adjustments to aid the child’s development.  But admittedly, with Rose, and with all her aspects that are very much like any other child, there can a be a different spin on things brought on by her unique expression of that extra chromosome.  That can be had to interpret and sometimes misinterpreted by her parents. 

Back at the campsite we settled into another evening of watching the campfire or, in our family’s case, struggling to produce a campfire that we could watch.  We pulled our camp chairs, four full size adult chairs and one child size chair, into a circle around the loosely positioned stones of the fire ring.  I sat with Rose in my lap, both of us more that a little fried from the long vacation day.  We watched as Cheryl and Erin and Katie worked to bring our fire to life.  Cheryl had stacked the logs in the center of the fire ring.  Her initial attempts at ignition had met with only a smoldering success.  Erin and Katie were scavenging the woods around our camp for fallen dead wood to use as kindling. 

My love contribution was to shout warnings, “Do you kids know what poison ivy looks like?” 

“Yes, Dad,” came back the answer, more than a little patronizing.

“Well, it’s getting dark.  It’s hard to see.  You need to be careful.” 

This last piece of wisdom was quietly ignored as they searched for more fallen twigs.  Erin came back to the fire ring with the first pile of kindling.  “Mom let me do that.  I can get it started.” 

Rose and I left for the bathhouse as Erin and Cheryl debated fire-starting strategies.  It was my normal responsibility to help Rose through her getting ready for bed routine, just as it had been with her two older sisters.  The bathroom, hand and face washing and tooth brushing routine took about ten minutes.  By the time we got back to the campsite we were greeted with an almost roaring campfire. 

“Dad!” Katie called with pride “Erin did it!” 

I looked into the fire ring, flames were climbing over the logs and a bed of red-hot coals was starting to collect at the bottom of the blaze.  I could tell that this was a serious, well-established campfire.  Erin crouched next to the fire, patiently feeding in more dried sticks. 

“Wow, Erin,” I said with genuine surprise “Nice job.  That looks great.  How’d you learn to do that?” 

“We made campfires every night at camp this year.  We had to do them ourselves so by the end of the week we were getting pretty good.”   

I can’t emphasize enough the importance of a good campfire, it’s the source of the evening’s entertainment, and it provides everything from the basic source of light, to the heat necessary to melt marsh mallows.  The firelights relaxing out of our ordinary routine beauty also provides the inspiration for many casual conversations.  There is something about a sitting around campfire that insulates you from the normal distractions of everyday life and allows for relaxed conversations to start to flow.  Rose also has shown her appreciation for the beauty of a campfire.  She saw her first camp fire about two years ago when she was just 16 months old and on her first camping trip and we could tell it made quite an impression on her.  Last summer, with Rose’s expanding signing abilities, together with more exciting camping trips, provided her with the incentive to learn and express herself.  Even days or weeks after those camping trips Rose would be recalling the fun to us.  She would excitedly sign to us, ‘tent-more’ and ‘fire-more’. 

And we’d answer, “Yeah, the camping was fun.  You liked the fire, Yeah, we’re going to be going again, Rose.”  Saying all of the words and signing the ones we knew.  This camping trip, Rose was enjoying more evening campfires.  She might have been feeling a little sick and not up to her usual energy level but she was still excited.  Rose sat on her mom’s lap as she took in the sight, at first leaning back into her mom to enjoy a nurturing healing cuddle as she did for hours on the beach in the afternoon.

Now, with the cool evening air and the benefit of her afternoon naps, Rose seemed to get some of her energy back.  Rose sat up straight leaned forward and rested her elbows on her mom’s knees.  Her two hands came together, palms up, fingers pointing up and wiggling like flames – fire.  Rose leaned down, looked through her wiggling fingers at the fire.  The flames from the fire lit her happy, excited face.   

Rose started to doze off early again. There would be no repeat of yesterday’s late night.  I carried her back to our tent and tucked the soundly sleeping Rose into her sleeping bag.  I  met Cheryl on the short walk back.  We started to talk as Erin and Katie continued to hover over and tend the fire.  We were struggling to understand Rose and her behavior over the last few days.  On many evenings, Cheryl and I will fall into discussions on our children’s lives, trying to understand what was happening, trying to determine what’s the best thing we, as their parents need to do or can do.  Sometimes it’s about Erin and her teenager issues, sometimes it’s about Katie and her manic artist personality but more times than not, it’s about Rose and her sometimes ordinary, sometimes unique nuances.  Over the last few days, it was clear that Erin and Katie were enjoying a dream vacation.  Tonight’s discussion was all about Rose.

“How do you think Rose is doing?”

“I don’t know. I’m not sure.”

“What was with that throwing up on the beach?”

“I don’t know, maybe she was dehydrated.  She seemed to be better tonight.”

“Yeah, she did but she still doesn’t seem to be over whatever she’s got.”

“She’s just not moving around much.  I mean she just stays where we put her.  On our other camping trips she was always off exploring or chasing after the other kids.  I mean, you know, I can remember spending a lot of time chasing after her.  She used to wear me out.”

“Well, maybe she’s changing.  Kids change.  Maybe she’s changing.  Maybe she’s just not interested in playing anymore.”

“Do you think so.”

“I don’t know.”

“Yeah, I’m not sure either.”

We hesitated, considered the two possibilities.

“It just seems like a big change if it’s just her personality.”

“Yeah, I don’t think so.  It seems like there’s been a few other times we thought it was behavioral and it always turned out to be a health issue.”

“Yeah, I guess so.”

“Yeah, I don’t know.”

“Did you notice anything funny about her breathing today?”

“Breathing?”

“Yeah, it sounded like she was taking really short, rapid breaths with kind of a huh-huh sound.”

“Yeah, I did.  It has to be pretty quiet to hear it.  I heard her doing that when she was sitting at the campfire.”

“She was doing it on the beach today too.”

“That’s new.  Do you know what that is?”

“I don’t know.”

“I don’t know either.  I don’t know.”

“When did that start?  Is that just today?”

“Yeah, I just heard her doing it today.”

“I don’t know what that is.”

“It just seems like, whatever it is, she’s not getting over it.  If anything, it seems like she might be getting a little worse.”

“Do you think we should call the doctor’s office?  Try to get an appointment for tomorrow afternoon?  Is this the kind of thing we call about?  It still seems pretty vague.”

We both thought about it for a second.  It’s a decision we’ve had to weigh many times.  Does Rose really need to go to the doctor’s office?  Is she going to wake up tomorrow and feel fine?  Is this just something new that we weren’t aware of that she’d just have to live with?  Are we being a nuisance?  Or is this something that’s easily treated?  Something that the doctor can spot quickly and provide immediate relief?  If we delay do we prolong Rose’s discomfort?  We considered the question and decided.

“Yeah, I really think we should.  Tomorrow’s Friday, we might as well go in tomorrow.  Let’s not wait until Monday and worry about it over the whole weekend.”

“Well, we have to pack everything up tomorrow morning.  That’ll take about an hour or more.  If we can wake up at a reasonable hour and get moving we should be able to get on the road by eleven.”

“We should be past New York well before rush hour.  That should be no problem.”

“OK, we’ll be back in Connecticut by mid-afternoon.  That should work out.  We can call on the cell phone when we get close and try to get an appointment.  They’re open till five.  We should be able to make it.”

Cheryl and I headed back to join Erin and Katie around the campfire.  We were feeling a little relieved with our discussion and our decision.  With Erin and Katie, when they were sick at three years old, it was much more obvious.  When they were sick, we knew it.  When they got better, they jumped right back into running and playing.  It was a fast dramatic change.  It seems with Rose, we spend a great deal more time in a wide gray fuzzy zone of parental uncertainty.  We feel our way along.  Has some minor illness dragged on too long or is Rose just getting a little cranky?  Are we seeing Rose’s true personality or are her actions influenced by something that’s making her physically uncomfortable.  I think back to the last winter and Rose’s long series of colds and sinus infections.  I can remember Cheryl and I having countless discussions then like this one just outside the campfire light.  As much as the signing has helped, as expressive as Rose is both verbally and with her body language, like with any young child and maybe more so with Rose, it can be very difficult at times to discern her true feelings.  But what’s carried us through, before and now, is just a basic belief in the goodness of Rose’s true self.  As Rose’s parents, we have a view of her life that stretches over the daily ups and downs across the few years of her young life.  Rose has shown us again and again the goodness at the core of herself and her strong urge to thrive.  Her spirit is strong and good and we are learning to listen to her.  This night, we needed to be reminded of that and let the memory of the goodness of Rose influenced our decision, and gave us a small nudge we needed to make the right decision at the right time. It was the touch we needed and it came from Rose and it left us feeling better for it. 

Cheryl and I sat up with Erin and Katie until the last log had been loaded on the fire.  We started to reminisce  about all we had seen and done, the Safari Park, the Statue of Liberty, the amusement park at Keannesburg, the day at Sandy Hook Beach, and even the campfires.  We had seen a lot of new sights, and had a lot of new experiences.  As a family, we had traveled down new roads and shared these experiences and it had gone well.  None of the normal petty squabbles, no over-riding distractions had gotten in the way.  A family peace had extended, uninterrupted throughout our vacation week.  We had honesty enjoyed ourselves and each other’s company very much.   

Friday - Starting Home

We woke the next morning to the pitter patter of Rose’s little feet or, more accurately, the digs from her sharp elbows and knees as she climbed over Cheryl and me to snuggle between us in our sleeping bag.  Rose was refreshed from other deep night’s sleep and was in a playful mood.  Sharing a tent with Mom and Dad was still a special treat for her. 

The day was more of the same beautiful dry perfect August weather we had enjoyed since the thunder storms had rolled through on Monday night.  It was maybe a few degrees warmer that Thursday but nothing like the heat and humidity we had fought through as we set up camp on Monday.  We worked together well as we packed up all our gear and loaded the van.  Erin and Katie alternated between watching Rose and helping to pack.  Rose was still more sedentary than normal but seemed to be in a good mood.  After the last sleeping bag had been rolled up, the tents taken down and all sorts of camping peripheral gear had been stowed in the van.  I stopped to take in one last view of our campsite.  Much of this story I have pointed with much more fore boding then we were feeling ourselves at the time.  Something was bothering Rose, we knew it, but we had talked about and come to terms with it, like we had many other times, or at least we thought so.  Parental talks like that are as much of our lives as late night discussions about whether Katie should play another year of violin or not, how to best handle Erin’s passage into teen hood.  It fits into our lives as just another part of being parents to three girls.  Sometimes it comes easy to us, sometimes it’s a struggle but it’s just part of our daily lives.  I felt it was important to openly recognize how well the vacation had gone, how much we had enjoyed each others company.  I’ve learned in the last few years to really appreciate and acknowledge the good life experiences when you have them.  They are not to be taken for granted, they are to be celebrated. 

To know one in particular, and to everyone I announced, “You know, this has been our best camping vacation ever!”  Katie and Erin stopped to stare at me.  Cheryl was helping Rose into the car seat. She stopped to look up.

“Really,” I went on, “This has been a lot of fun.”

“Dad!” Katie cut in.  “Stop it you’re going to jinx us!”

“Oh, come on, seriously,” I said.

“The weather was great.  We did a lot of neat stuff.  This had to be our best camping trip ever!”

“Dad!  Come on, cut it out.”  Erin chimed in.  “We’re not home yet, you know.”

“Yeah, Dad,”  Katie, the actress was starting to enjoy herself.  “Don’t say that you don’t know what could happen.”

We were laughing and enjoying our little drama as we climbed into the van.  Cheryl was shaking her head at our play-acting.  But now, I don’t know, maybe the girls just have a better sense of the unexpected than I do. 

We did make good time on the drive back.  Traffic was light on the Garden State Parkway as we headed North.  Rose soon dozed off in her car seat for what was becoming another one of her regular naps.  The car was quiet, Cheryl sat in the front passenger seat reading Marvin Levin’s “One Mind at a Time.”  I was driving over the now familiar roads, no need for direction assistance.  The three girls were crowded into the bench seat behind us again.  Erin sat behind Cheryl reading a book.  Rose was in the middle sleeping in her car seat.  And Katie sat behind me, listening to music on her CD player through her head phones.  Behind them, where the third bench seat had been, all our camping gear was packed again, piled almost high enough to block the view out the rear window.  The car was quiet and we did what all families returning from vacation do when the car is quiet.  We drove, just put our heads down and drove, trying to gain as many miles as we could on the journey home.  The desire for the simple satisfaction of returning home was starting to grow strong. 

We were late for lunch and long overdue for a bathroom break when we finally pulled into the rest stop off of I-84 in Danbury.  New Jersey and New York were behind us and we were back in Connecticut.  Rose had woken from her car seat nap about a half an hour earlier.  She seemed uncomfortable and restless.  Erin had communicated to us a more specific discomfort, we had been in the car for over two hours and she needed a bathroom break.  We had been disappointed when we had driven past one closed rest stop just over the border in New York.  Rose was getting restless, she seemed uncomfortable and was fidgeting in her car seat.  Erin was getting almost equally uncomfortable, feeling the pressure build in her bladder.  We had driven another twenty minutes before we pulled into the rest stop in Danbury.  We parked under some trees near a small picnic area.  Cheryl took Erin and Katie to find the bathrooms.  Rose and I sat at a shaded table and started on the lunch that Cheryl had packed that morning.  I had carried Rose from the car to the picnic table bench, Rose had shown no interest in making the short walk on her own.  She showed the same lack of interest in her lunch, hardly touching the juice and yogurt I offered her.  She wasn’t interested in eating a big lunch. 

Rose held her right arm up and touched her left hand to her right elbow, even as tired as she was it was still a quick fluid motion, fish.

 “Cracker,” I said. 

Rose waved her left hand across in her in a swimming motion, cracker. 

“Fish,” I answered, “You want gold fish cracker.”

Rose looked at me with a tired, resigned expression on her face.  She may have just signed ‘cracker-fish’ but she meant a lot more than that.  She meant stop bothering her with food that she had no interest in.  She wanted her comfort food, Pepperidge Farms Gold Fish cracker.  I could see how tired she was and I didn’t have the heart to push her. 

I sighed as I pulled out the foil bag and poured out a small handful of crackers, “OK, Rose.  Here you go.”  Rose was quietly munching on a gold fish cracker when Cheryl came walking back with Erin and Katie.  It was my turn for a bathroom break but first Cheryl and I shared a quick report.

“How’s Rose doing?  Did she eat any of her lunch?”